Meet Our CMN Hero Zari!

Azaria (Zari) has had a remarkable journey in her young life – from the health conditions she’s battled to finding her forever family. She is truly an inspirational Hero.

Zari was born prematurely at around 25 weeks, and as a result, has cerebral palsy, is deafblind and has severe cognitive disabilities. It’s a lot for one child to contend with and can be difficult for her caregivers and teachers. Children’s Miracle Network Hospitals has been there to help with the challenges along the way.

As she entered her schooling years, Zari received services through Hiawatha Valley Education District from a very special teacher, Sandra. When she turned 15, a new challenge arose – finding a family who would help her thrive. Few others knew Zari and her complex needs as well as Sandra. So she stepped in, and along with her husband, Billy, formally adopted Zari.

Since then, Zari has endured many substantial medical procedures, including a 12-hour surgery to straighten her back, as she dealt with severe scoliosis. That’s on top of the sleep studies, sedated dental cleanings, hospital stays due to illness and countless other hurdles Zari’s had to move past. But Zari hasn’t simply cleared those hurdles – she’s soared over them. That’s what makers her our Hero.

Now a teenager who has graduated high school, Sandra says Zari is a happy, affectionate and funny young lady who “has brought so much love and enjoyment to our lives.” And they’re thankful for all the help Children’s Miracle Network Hospitals has provided throughout the journey, which includes medical equipment for their home and portable equipment to help her travel to see relatives.

“We use every piece of equipment and are very grateful to have them available to us,” Sandra says.